Iowa Department of Elder Affairs serving Iowans age 60 and over Human Interaction  

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Help Me Stay at Home
| Determining Your Needs | Self Advocacy

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Help Me Stay at Home
There are currently thousands of older Iowans who qualify for nursing home level of care, but are successfully living in their own homes with the support of services and their communities. Many times when individuals think of "long term care" they think of facilities; however, there is a wide array of services included within the long term care continuum. Long term care ranges from Home and Community based services (such as housekeeping, chore services, adult day services) to Skilled Care Facilities which provide ongoing nursing care.

Am I Ready to Leave the Home in Which I Currently Live?

If you are looking for information or wanting assistance in making decisions about staying in the home you are currently living in or your options in finding a future home, your local Area Agency on Aging (AAA) is available to you and your family and a comprehensive source of information about services and options in your community. Iowa's AAAs provide information and referral to all Iowans 60 and over, including, but not limited to: adult day services, case management, chore services, companion & respite care, congregate meals, consultations about other problems, employment assistance, health-care aides, home-delivered meals, home repairs, legal assistance, meal sites, modifying the home for disabilities, nursing & homemaker services, senior centers, and transportation. AAA's are also a valuable source of information on how to access and purchase services. There is no charge to the consumer for information and referral services. For further information on the services available in your local area please visit the Area Agencies on Aging website or the National Alliance for Caregiving website.


Another valuable Web-based source of information is Iowa's Aging and Disability Resource Center (ADRC) and the ADRC website LifeLongLinks.org. LifeLong Links is a resource for all Iowans, especially older Iowans and their caregivers and persons of all ages with disabilities. The website provides information about several issues areas related to future planning and long-term living and connects informed consumers with local services through Iowa's existing information and referral resources for aging consumers and caregivers (Iowa Association of Area Agencies on Aging Family Caregiver Program). In addition, the ADRC website connects persons of all ages with disabilities, family members of persons with disabilities (Iowa COMPASS) and consumers seeking information about general health and human services resources (Iowa 2-1-1) to information on local services.

What if I want to stay in the home in which I currently live?
There are several ways to accommodate your desire to stay in the home you are currently living in. Please visit the following links to find out more about what services are available to assist you in this process. The case management section of this website explains what type of assistance a case manager can provide.
Lifelonglinks.org
Housing - Ensuring a Safe Living Environment

Are there services out there to support caregivers?

We understand the difficulties spouses, partners, children and friends face in trying to keep adults experiencing disabilities at home. The caregiver section of our website provides information on how to help caregivers find resources and assistance.
 
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Determining Your Needs
Many families and support networks wait until an individual is in crisis before they begin communicating about future care needs. Due to the crisis, there is often not enough time to consider all of the important issues that may arise within families and support networks. It is extremely helpful to discuss your potential future care needs with your family or support network before a crisis arises. Planning for the future can be difficult, but is necessary to better assure your desires are met. The bullets below can help you identify some of the issues that you will want to consider in your discussion. To download a printable version in a checklist format please click here.

The first step in remaining in your own home is accessing the types of services or supports you and your family will need. What specific services are important to you? Will you need to consider the health of a partner or family member as well as yourself? Remember, you will likely need more support and services in the future than you do now. You will want to consider the following specific services:
- Financial Planning
- Legal issues (Wills, Advanced Directives, Power of Attorney, estate planning, etc.)
- Transportation - Social activities
- Snow Removal & Lawn Care
- Housekeeping Services
- Assistance with cooking & meals

- Physical Therapy
- Speech Therapy
- Occupational Therapy (improves ones ability to perform daily activities)
- Health monitoring of blood pressures, food or liquid intake, weight
- Mental Health
- Exercise
- Mental stimulation
- Personal care or assistance with bathing, shampoos, shaving, toileting
- Adult Day Services
- Assistance with walking
- A safe, secure environment
- Dementia Services

To find out more about how to bring needed services or supports into your home you can contact your local Area Agency on Aging or you can go to the Iowa Family Caregiver website to find out what services are available in your area.

Many older people need help paying for prescription drugs, health care, utilities and other basic needs. Many older Americans are eligible for but not receiving benefits from existing federal, state and local programs. Ranging from heating and energency assistance to prescription savings programs to income supplements, there are many public programs available to older Iowans in need if they only knew about them and how to apply for them. BenefitsCheckUp is a web-based service to screen for benefit programs for older adults with limited income and resources.

If you do not wish to remain in the home where you currently reside you may want to consider an independent living community or a senior retirement home.
If you feel you need a higher level of services or supports Assisted Living Programs, Elder Group Homes, Residential or Nursing Care Facilities are other options available to you.
 
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Why Should I Care About Self Advocacy?
The best advocate is YOU, your legal representative, family and support network. Try your best to solve problems at the local level. However, if full resolution doesn't occur we strongly encourage you to contact any of the following organizations:
Iowa Department of Elder Affairs (IDEA) The IDEA serves all Iowans 60 and older in multiple ways. IDEA's mission is to provide advocacy, educational, and prevention services to older Iowans so they can find Iowa a healthy, safe, productive, and enjoyable place to live and work. IDEA has two divisions: Policy & Administration and Elder Rights/Home & Community-Based Services. The goal of both divisions is to work to accomplish the wide-ranging goals of the Older Americans Act.
Jessie M. Parker Bldg
510 E 12th St., Suite 2
Des Moines, IA 50319
Website: http://www.state.ia.us/elderaffairs/index.html
E-mail: terry.hornbuckle@iowa.gov
Phone: 515-725-3336

Long-term Care Ombudsman & Tenant Advocate

Inquiries of all types related to long-term care are welcomed. Callers can choose to remain anonymous. There are several common types of inquiries that this office receives:
. To report concerns about a nursing facility, assisted living program, elder group home or residential care facility. At the request of the resident or family, the Ombudsman/Tenant Advocate may visit or call the facility, review records, meet with staff, and put a plan in place to deal with the problem.
. To obtain assistance in situations where a resident/tenant is facing discharge from a facility involuntarily.
. To check on standard practices in long-term care.
. To clarify state guidelines on particular practices.
. To obtain information on choosing a care facility, assisted living program, or elder group home
. For general information about long-term care.
. For Resident Advocate Committee volunteer opportunities.
. For educational materials or programs.
Local: 515-725-3327
1-800-532-3213
Website: http//www.state.ia.us/elderaffairs/advocacy/ombudsman.html

Area Agencies on Aging

Area Agencies in Iowa provide information and referral services to older Iowans, including, but not limited to: adult day services, case management, chore services, companion & respite care, congregate meals, consultations about other problems, employment assistance, health-care aides, home-delivered meals, home repairs, legal assistance, meal sites, modifying the home for disabilities, nursing & homemaker services, senior centers, and transportation. There are 13 different Area Agencies on Aging throughout Iowa.
For a list of all the Area Agencies on Aging, or to locate your own please click on the following link: http://www.state.ia.us/elderaffairs/Documents/AAAList.pdf
Website: http://www.iowafamilycaregiver.org/index.asp
E-mail: i4a@i4a.org
Phone: 866-468-7887 or 515-255-4004

Iowa Department of Inspections & Appeals (IDIA)

The IDIA enforces regulations for assisted living, elder group homes and adult day services. They provide the monitoring services that relate to licensing and certification standards. When you have a compliant about an assisted living, elder group homes and adult day services the IDIA leads the investigation process into your complaint. Examples of when to contact the IDIA include:
. To file a complaint
. To check on the status of a certification or recertification of assisted living, elder group homes and adult day services
To file a complaint about assisted living, elder group homes and adult day services, please call the Iowa Department of Inspections and Appeals complaint hotline at 1-877-686-0027.
Iowa Department of Inspections & Appeals
Lucas State Office Building
321 East 12th Street
Des Moines, Iowa 50319-0083
Website: http://www.state.ia.us/government/dia/
E-mail: Webmaster@dia.state.ia.us
Complaint line: 1-877-686-0027
To obtain a copy of the monitoring reports of any assisted living program, adult day service or elder group home call: 515-281-6325.

Medicaid Services

If you are a recipient of state of Iowa Medicaid and are not happy with the services you are being provided, in addition to the Tenant Advocate and the Department of Inspections and appeals, you may present your concerns to the Medicaid Services Complaint Line.

Complaint line: 1-800-338-8366 or 515-725-1003

Dependent Adult Abuse Hotline

If you suspect abuse, neglect or exploitation of an individual 60 or older, please contact the Iowa Department of Elder Affairs for information at 1-800-532-3213.
Website: http://www.elderabusecenter.org/
If between 8am to 4:30pm Monday - Friday call: (515)281-4115
Institutional elder abuse phone: 1-800-362-2178
If the victim is currently in danger, a report should also be made directly to local law enforcement officers.

H.O.M.E. Inc (Tenant/landlord issues)

If you feel your rights as a tenant are being overlooked or you have concerns with how an ADS/EGH/ALP are implementing discharge procedures you should contact the Longterm Care Ombudsman at 1-800-532-3213 as well as the Home Inc Complaint line.
Community Housing Services Program
1111 9th St. Ste. 210
Des Moines, IA 50314
Website: http://www.homeincdsm.org/news.html
E-mail: staff@homeincdsm.org
Phone: 515-243-1277

Iowa Attorney General's Division of Consumer Protection
To receive more information regarding Arbitration Agreements or for other legal issues involving assisted living, elder group homes and adult day services contact the Division of Consumer Protection.
Iowa Attorney General
Consumer Protection Division
1305 E. Walnut Street
Des Moines IA 50319
Website: http://www.iowaattorneygeneral.org/consumer/index.html
E-mail: consumer@ag.state.ia.us.
Phone: 1-888-777-4590 or 515-281-5926

National Senior Citizen Law Center (NSCLC)

The NSCLC works on a variety of senior issues and may be of assistance in obtaining further information or support on any of the issues discussed above.
1101 14th St., NW Suite 400
Washington, DC 20005
Website: http://www.nsclc.org/
Email: nsclc@nsclc.org
Phone: 202-289-6976


Alzheimer's Association
The Alzheimer's Association has multiple sites throughout Iowa and can assist caregivers in a variety of ways. Locations in: Burlington, Davenport, Dubuque, Newton, & West Des Moines
Website: http://www.alz.org/
Phone: 1-800-272-3900

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